Sign the Petition with Open Letter to Health Minister Petitpas Taylor

Please sign and share our Petition demanding Health Minister Petitpas Taylor:

  • stop the ME epidemic and initiate an emergency response for 560,000 Canadians diagnosed with ME
  • fund ME research with the $88 million missing each year
  • start ME treatment with access to Ampligen and other medications

Stop the harm. Fund the research. Start the treatment.

ME Epidemic in Canada from Millions Missing Canada on Vimeo.


7 comments on “Sign the Petition with Open Letter to Health Minister Petitpas Taylor

  1. Maria says:

    I’ve gone from teaching, snowboarding, and enjoying life to now spending most of my time totally ill in bed. I’ve lost 35 pounds very rapidly and can barely eat. It’s an endless search for doctors and in the city the size of Toronto you’d think there would be at least one. Doctors don’t know what to do with us, so we just try to live each day as best we can. Unfortunately the desire to commit suicide can be quite strong, because there doesn’t seem to be much light at the end of the tunnel. We’re too sick to advocate for ourselves, but we are in desperate need of assistance.

    1. Scott says:

      Well said. It is a frightening situation we’ve been cornered into by a biased and stigmatizing system.

  2. Inge fowlie says:

    I have watched my friend suffer. She was well after many years but sadly the illness has returned and suffering is truly beyond description.
    Any research that could shed light on how to help these sufferers would be deeply appreciated.

    1. Scott says:

      It is a wretched disease, made worse by a neglectful health care system. I hope your friend finds some thing to help her quality of life.

  3. Linda says:

    I have never heard anything about research and education on ME in the general news Surely with a disease with so many sufferers, there should be sufficient money allocated for research and public access to the results. These patients need doctors who understand ME and have access to up-to-date information. My friend suffers from ME, and it is heart-breaking to follow her fight with this debilitating illness. Both she and her husband are well-educated and intelligent and able to research in depth about this issue, but there is little help to be found in Toronto. I wish all the sufferers from ME the best of luck.

  4. Kathy Bawden says:

    After an active life cycling, skiing, swimming, walking, socializing with friends and I like to think in my occupation I contributed to society and made a difference, I became ill with Myalgic Encephlomyelitis and Fibromyalgia.

    After consulting with many physicians, I got either partial answers or total lack of support for the illness. I have been ill for 17 years.

    I fail to understand why Canada is not dedicating more research towards this debilitating illness. Many Canadians with a cure or at least some treatment to keep symptoms under control could become contributing members of our society. The alternative is individuals suffering in pain with chronic fatigue and physicians, families, friends not knowing what to say or do. This makes a very lonely existence for the individuals with this illness.

  5. Deborah says:

    I have had ME for many years. As has been explained elsewhere many systems can be affected and this is true for me. I am housebound–mostly bedbound and not only physical energy is affected but cognitive functioning as well. I could not (when I was still able) find a Dr who would take the time to work with me to find meds that might provide some symptom relief.

    I feel completely and utterly ignored by the Canadian medical system now. Should I need any treatment for anything that is not ME I have no hope that I will receive it either. In the past after various medical appointments I had felt either patronised or bullied. This Canadian citizen’s future only seems bleak with more pain and suffering and no restful sleep.

    People with ME are the people Canada has chosen to leave behind.

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