We have been working with filmmaker David Cruz Pedraza to capture our protests, disruptions, and interviews with patients, physicians, and researchers.
If you are interested in participating in the documentary, email us!
2 comments on “Be a part of the Canadian ME documentary”
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Do I have ME? I have no idea. However, I got and get tired of being tired. I currently work up to 8 hours a day. My workplace is flexible, so I try, everyday to get there by 7:50am….but I rarely make it to my desk before 8:05. The sad thing is, I’m up at 5:50am, my drive to work is only 20 minutes. I then push through my work day to make it to 4:10 (this is 8 hr, 7 paid, 1/2 lunch & 1/2 banked). Banked time generally works out to a full day off with pay. I’m home by 5’ish and I do not sit down until I have prepaid my quick meal, changed into pj’s, set alarms & coffee, and talked to a friend or two (btw: friends can usually can only get a hold of me between 5pm – 7pm, if i have the strength to talk). Then I sit, eat, watch an episode of something and have to be in bed by 7:30. If it’s get’s to 8, I start to panic, because i will get less than 10hrs sleep. Most people do not know or believe how much I have had to limit my life, just so I can stay independent. I suffer from depression which further adds to the pain of trying to be productive. At work, where I spend most of my time, I have found it increasingly difficult to explain (articulate) my thoughts. I just watched “Unrest”. A great documentary, but it scares me. I see my family doctor, councillor and other self-help support on a more than regular basis & nothing we have tried has helped. So, do I have ME? My doctor finally said I have Chronic Fatigue. She told me the only reason she didn’t want to diagnose CFS, is because there is no cure and the diagnosis just gives it a name, not a solution. So yes, I am a 51 year old, single Canadian, living in London Ontario (great medical research city) who’s health is fading. If it’s ME, how do I help myself if the medical community doesn’t have answers….solutions….treatments. I have CFS….now what?
We need access to ampligen!
Needs to be FDA approved
then Health canada will lift the RED TAPE!
Also needs to be affordable